Wednesday, June 20, 2012

Pity Party of 1.

So, a few weeks ago I mentioned how Braden's doctors office had to call us to schedule autism evaluations but got the run around for weeks. I had to call and just schedule a check up to even get answers because they never called about it. It's frustrating, but anyway, it's a bigger mess now. The doctor was nice but then said EFMP(which has been non existent to us since we got here in OCTOBER) usually schedules those evaluations. See, had I known that previously, I would have gone thereto start with, if they were actually ever open. The one at ACS usually is but we need the office in the hospital. Okay, so then he said he needed to call the EFMP office on post to ask about Braden's information and that he'd get the referrals going for his speech and occupational therapy and to see about getting him evaluated for more than autism since he didn't get an "official" diagnosis, even though doctor in Colorado diagnosed him with SPD, speech delay, and developmentally delayed.

 So does the other doctors diagnosis not count because we're in a different part of the country? It doesn't make sense to me at all.

He said the coordinator was in a conference call and that he'd call back in an hour and then call me that afternoon. Look, a week later and still no call. Why does this not surprise me? It has been nothing but a big cluster mess since we moved here and I honestly wish we stayed in Colorado. I wasn't happy with certain people or my husbands chain of command but was it really that bad? Was I overreacting? I know I wasn't with the stalker FRG leader, but Braden had so much going for him, it was great. He was improving his speech and OT was doing wonders for him. He was even going to school, which was a great understanding from the parapro that he had special needs but wasn't able to get a IEP. I do feel selfish for this.

I wanted us to get away from my husbands bad command so badly, we would do anything. (And no, he didn't qualify for a IEP in the school because his speech was just barely above the requirement for getting one. And SPD to them isn't a "real" diagnosis, but SPD is REAL!)

You can check on the Tricare regions website for the referrals and I figured, maybe, since they didn't call they put the referral in anyway, but it doesn't show up there. Wyatt's does for his hospital stay and in fact, Braden's SP/OT referrals in the Triwest region still shows up. It's ridiculous. I call and they always say they'll call me back. Never do.

How am I supposed to get my son help if they can't even do their part?

2 comments:

  1. Shoot, at this point Kena, I would call three times a day, everyday until someone does their job.

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    Replies
    1. It's really getting ridiculous. I switched the boys to see a doctor off post because it takes forever to even get appointments. Maybe I should 20x a day until something gets done.

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